As we have entered into the new year, one of my goals has been to get back to writing. When I first decided to begin this blog, my intentions were for this to be a place that I can give updates about Rhett and share our story. Over time my writing has become more sporadic for different reasons. Things with Rhett have started to slow down medically, and with having baby #2, I have just not had the time to sit down and write. Writing in this space allows me to share our journey, but also gives me a kind of therapy where I can really get my thoughts and feelings out. So with the new year, I hope to write more often and share more about our medically complex life.
When Rhett was first born, one of my biggest questions was “why?” Why did God allow him to be born with so many anomalies? Why does our journey into parenthood have to be so difficult and different from what we imagined? Sometimes I still have those “why” questions. Why does Rhett have to go through so many surgeries and procedures? Why does he have to work so hard to accomplish things that come so naturally to most people. The list of my “why” questions could continue on forever. I really don’t have answers to any of those questions, and I probably never will. As I have entered into another year of parenthood, now with both a medically complex and typical child, I knew I wanted to start something different in the direction this blog was going. Although I don’t know the reasons as to why God has allowed Rhett to be born with so many problems, I do know there has to be a purpose to all of this. The only thing I can think of to do to help it all make more sense is to share. The good, the bad, and the ugly. The highs and the lows. The big trips, the small appointments, the daily therapies, home life, the inchstones, the milestones, the parenting two very different children with very different needs. I know I have partially been doing this already, but with the new year I plan to share even more. I want to be more transparent in hopes that others can have a little better understanding of what life looks like as a medically complex family. I want to give new parents facing a similar journey hope. I want to give those with loved ones who have similar stories patience and understanding. I want to spread awareness and advocate to the world what my child needs in order to function in a world that is not made for him. And I also want to share about Brooks who has been born into a family that is very different than most. I want to share how this medical life impacts him as well, and that all of his accomplishments are just as wonderful.
I have a few ideas of things I want to write about, so be looking out for new posts and updates. If you have questions or would like to know something specific about our life, please let me know with a comment. Most importantly, through all of my stories, I hope you will see the reflection of Jesus. I know we would not be where we are in this journey without the grace, love, and strength that God has given us.
Thanks for following along this wild ride. We love you all! 🤟🏼💙