Category Archives: Uncategorized

Our busy week at Cincinnati Children’s finally came to an end, and we left with an abundance of information.  The week was busy and exhausting, but truly informing.  Rhett did an awesome job, and was his usual happy self despite all of the poking and prodding he had to endure.  Once again, he never ceasesContinue reading “Our Week in Cincinnati”

This next post is not necessarily an update in regards to Rhett’s health, but I want to share some emotions I am experiencing as we prepare for our trip to Cincinnati. We leave for Cincinnati in just a couple of weeks, and it seems as though this trip that I thought may never happen, hasContinue reading “Road to Cincinnati”

When we brought Rhett home from the NICU, we knew we were leaving with at least one other surgery in our future.  Since then, I have been researching A LOT.  I have researched the best hospitals, the best surgeons, and the most successful surgical procedures for the type of surgery he needs.  I have alsoContinue reading “Our Next Adventure”

If you read my first post, you might be wondering, “What is CHARGE syndrome?”  CHARGE is an acronym that stands for: Coloboma of the eye (a hole in one of the structures of the eye), Heart defects, Atresia of the Choanae or Choanal Atresia (blockage in the nasal airway), Restricted growth and development, Genital abnormalities,Continue reading “Charging On”